Atypical Haemolytic Uraemic Syndrome Specialised Services for NHS England

Atypical haemolytic uraemic syndrome (aHUS) is a chronic, rare, progressive condition that causes severe inflammation of blood vessels and the formation of blood clots in small blood vessels throughout the body, a process known as systemic thrombotic microangiopathy. NHS England is seeking bids from provider(s) that can deliver a service for patients with aHUS that meets the specific terms set out in the NICE guidance, namely: • coordination of eculizumab use through an expert centre; • monitoring systems to record the number of people with a diagnosis of atypical haemolytic uraemic syndrome and the number who have eculizumab, and the dose and duration of treatment; • a national protoco…

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